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M uscular
Improving the quality of life for those affected by a neuromuscular disease or disorder

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Privacy and Financial Information

The the privacy of our clients is very important to us.

Our websites and mobile app provide convenient ways for you to access our services and learn about important NMDSO opportunities and events. We collect information about our online visitors both directly from our visitors .We use this information to communicate with our supporters and clients and process their transactions. We do not sell it to other organizations.

Donation Refund Policy
We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.
Automated Recurring Donation Cancellation
Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

Financial Information and Accomplishments

Annual Financial Statements and IRS filings are available by calling our Executive Director at  252-733-0799

Fiscal Year February 1, 2017 through January 31, 2018,  NMDSO is very proud to report that we;
Participated in a series of disease specific support group meeting
Assisted 4 families in need of long term care solutions by helping them understand basic needs and area facilities that would meet their needs. The final decision was up to the families.
Coordinated with State Agencies to provide assistance to 3 families in need of assistance which included a ramps, home care and non medical supplies.
Purchased and delivered medical equipment/supplies to 5 people in need and not covered by insurance or the insurance would not cover the cost of the equipment
Hosted 2017 NMDSO Outreach and Educational Summit in August attended by 75 people and have received 75 requests to make this an annual event. We are planning another event in 2018 due to the positive response.
Participated in 3 local Community events to promote awareness.
Completed a study to determine a course of action to open Jenn’s Respite Care with the goal to open in 2020.
Started the research necessary to develop a long term care guide to assist families looking for a new home for their loved one.

In 2018 we plan to continue and build on our 2017 accomplishments, publish the NMDSO Long Term Care Guide, finalize the Jenn’s Respite Care Facility plans, and raise the money for the respite care facility, and general operations.